Rare Diseases
During members’ statements, Helena Jaczek spoke about rare diseases, saying that although each condition is rare, over 3.2 million Canadians are affected in total and the conditions can be debilitating and life-threatening. She cited a family whose teenage child developed severe symptoms, said the government is providing $1.4 billion for access to rare-disease medicines, and noted that a rare-disease advocacy group is calling on Parliament to improve testing, treatments and care beyond 2027.Written by AI from the debate. Updated .
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